Funding Research.
Building a Community.
Finding a Cure.
Dedicated to understanding and supporting those affected by Mosaic Variegated Aneuploidy (MVA) syndrome
We are the only organisation in the world dedicated to Mosaic Variegated Aneuploidy (MVA) an ultra-rare genetic condition affecting fewer than 50 people worldwide.
Our charity is committed to funding focused research into MVA, ultimately enabling us to find treatments and a cure, whilst building a community of patients and their families along the way.
George’s Story
When George was diagnosed with Mosaic Variegated Aneuploidy at just two years old, his family was told there were no treatments, no support networks, and almost no information available.
His journey inspired the creation of the MVA Society - to ensure no family faces this diagnosis alone again.
Our impact at a glance
£160,000 raised of a
£250,000 research funding
target - and counting
2 active research projects
underway, with a third focused
on single-cell RNA sequencing in
development
Fewer than 50 known lives
affected globally - and each one
matters deeply.
1st Anniversary Charity Dinner
On Wed 12th November, the MVA Society hosted their 1st Anniversary Charity Dinner at the prestigious RAC Club in London. The evening was superbly hosted by Hugh Brasher, CEO London Marathon.
We were also fortunate to have Lisa Stevenson from Sotheby’s running our auction – which was a huge success raising a whopping £50k to go towards our research plans for 2026.
A massive thank you to everyone who attended and supported this event.